invisible illness awareness week · my invisible fight · national psoriasis foundation · psoriasis · psoriasis awareness

#MyInvisibleFight : 30 Things About My Invisible Illness

“Be kind, For everyone you meet is fighting a hard battle.” -Plato

It’s Invisible Illness Awareness Week (September 28 – October 4) and I’m encouraging everyone with an Invisible Illness to stand up and stand out!

As most of you know, I was diagnosed with Severe Plaque Psoriasis only a few years ago. I try to keep my blog posts light and happy but the truth is, it can be a crippling illness.

When I learned that I would have Psoriasis for THE REST OF MY LIFE I broke down. I sat in bed with my computer open, reading other peoples blogs, for days and cried. Seems silly but it was a huge blow for me. At the time I was COVERED in spots that varied from dry and flaky to sore and bloody. My scalp, my ears, my eyebrows, my neck, my arms and legs, my torso… everything… covered. The only things pretty clear were the palms of my hands and feet and the center of my face (aside from my eyebrows). The hot water burnt my skin and made me bleed, sleeping was impossible because I was consumed by open wounds and sores and the slightest move was painful, my scalp just had CHUNKS of dry skin that i picked constantly… i picked it so much, i wondered if i was picking through my skull! I was tired, I was in pain, I was miserable, people were disgusted by me (even if they didn’t say so), I love to cook but avoided the kitchen because I knew no one would eat anything I made (I would hesitate to eat anything someone who looked like me made!)… it was awful. I saw NO END to my illness and technically there IS NO END; this is something I will have for the rest of my LIFE. But I’m only in my 20’s! I’m single! Who’s going to want to date me??? How can I get jobs like this??? My life was at an all time low. Even the lotions and creams that soothed my skin temporarily had to be saran wrapped on and were sticky and messy and smelly. I saw no end to this…

But I looked at Brooklyn, my little wonder pup, and thought “hm, this little life depends on me and loves me and wags her tail no matter what I look like…” So I started SeeingPspots to vent, to motivate, to help people like me who were in bed reading about their psoriasis for the first time. I decided to be PRO-ACTIVE instead of IN-ACTIVE. Yes, this is a lifelong battle for me. Yes, it’s gonna suck sometimes. But I revel in my skin when it’s clear and I do the VERY BEST at being positive when it’s not. We are ALL fighting battles of various proportions… be the best version of you, always. ❤

30 Things About My Invisible Illness You May Not Know

1. The illness I live with is: Severe Plaque Psoriasis
2. I was diagnosed with it in the year: 2014
3. But I had symptoms since: 2013
4. The biggest adjustment I’ve had to make is: Accepting the person underneath the skin
5. Most people assume: I am being vain and am not actually suffering
6. The hardest part about mornings are: Facing the day and being positive when I am sad or don’t want to look in a mirror
7. My favorite medical TV show is: House
8. A gadget I couldn’t live without is: My Phone
9. The hardest part about nights are: Sleeping
10. Each day I take 5 or 6 pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: Try everything and am a huge advocate of treating your insides the way you want your outsides to look like
12. If I had to choose between an invisible illness or visible I would choose: I wouldn’t change a thing
13. Regarding working and career: My illness has certainly morphed what I want to do with my life in a positive way
14. People would be surprised to know: not much… I’m an open book.
15. The hardest thing to accept about my new reality has been: that people are vain and when I’m not pretty on the outside the amount of people who want to be around me decreases significantly
16. Something I never thought I could do with my illness that I did was: wear a bathing suit again!
17. The commercials about my illness: make me a little angry. They can be inaccurate. They show the elation of the patient AFTER being clear but not how we feel PRIOR to clear skin.
18. Something I really miss doing since I was diagnosed is: sleeping better
19. It was really hard to have to give up: crappy food. But I allow cheat days =)
20. A new hobby I have taken up since my diagnosis is: Blogging ❤
21. If I could have one day of feeling normal again I would: Right now I am pretty clear, so I do whatever I can: cook, work out, take hot showers… little things my skin doesn’t permit when it’s in super flare up mode.
22. My illness has taught me: to not judge a book by it’s cover. The happiest people are sometimes fighting the largest battles.
23. Want to know a secret? One thing people say that gets under my skin is: grammatical errors
24. But I love it when people: point out MINE lol
25. My favorite motto, scripture, quote that gets me through tough times is: saying the “Hail Mary” prayer
26. When someone is diagnosed I’d like to tell them: I PROMISE, it is going to be O.K.!!! and give them a (gentle) hug
27. Something that has surprised me about living with an illness is: that I am stronger under pressure and adversity
28. The nicest thing someone did for me when I wasn’t feeling well was: love me anyway
29. I’m involved with Invisible Illness Week because: I believe in spreading awareness for my illness
30. The fact that you read this list makes me feel: special =) THANK YOU!! ❤

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3 thoughts on “#MyInvisibleFight : 30 Things About My Invisible Illness

    1. So, I’m going to allow this on my blog and I’m going to tell you why. Firstly… if YOU’RE going to insult me and this community, learn how to spell. Secondly… I’m sure this is someone I know personally. Having said that, kindly grow a pair or put your big girl panties on and address me properly. Lastly… you not only attempt to offend me by being rude on my blog but you offend my friends and “family”. Take your negativity elsewhere. We have TOUGH SKIN, remember? 😉 Thanks for reading though. Best. -B

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